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Genetics Clinical Manifestations Prognosis Diagnostic criteria Surveillancetreatment Navigating TSC Beginning Your Journey Prenatal diagnosis Childhood diagnosis Adult diagnosis Navigating Life Stages Coordination of care Caregiver resources Surveillancemanagement Mental health Pharmacy Resources Medication access issues Medication resources Types of pharmacies TSC-associated neuropsychiatric disorders (TAND) Stories of Hope Find Support Find a TSC Clinic Bcureful travellodging assistance Educational support Community support network Adult support Connect with a Support Navigator Resources Resource Library TSC Academy Get Involved Volunteer Participate in research TSC Biosample RepositoryNatural History Database Seizures and TSC: your data matters! TSC clinical trials Government advocacy TSC Matters E-Newsletter Become a member Run with Team TSC Ways to give News Events Donate Hope no matter how complex ™ Together we can create a future where everyone affected by tuberous sclerosis complex can live their fullest lives. Email Address Join Our Community Stories of hope Ryelyn Seraphina Christian Brian Daniel Megan Shae Amaan Keira Terrence Max Chloe Living with TSC Guidance and support for every step of your journey Our bold mission To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support. Our powerful impact $ 37 M invested in TSC research 3 FDA approved drugs $ 113 M appropriated from federal advocacy Spotlight on 2024 marks the 50th anniversary of the ®! Throughout the year, we’ll celebrate five decades of progress as well as look forward with much promise for the future. Read More: Splotlight on NewsEvents All News Events Calendar New TSC Academy course available! A new TSC Academy course, "TSC Clinical Consensus Guidelines," provides an overview of the importance of the International Tuberous Sclerosis Complex Diagnostic Criteria and Surveillance and Management Recommendations , how they can be implemented and used as a tool in advocating…... New TSC Academy course available! 2024 Regional TSC Conference Series – Chapel Hill, NC One-day Regional Conferences feature leading local researchers and clinicians specializing in TSC. Topics will include…... 2024 Regional TSC Conference Series – Chapel Hill, NC 50th Anniversary Gala: An Evening of Progress and Promise Join us for an evening of progress and promise as we celebrate the 50th Anniversary…... 50th Anniversary Gala: An Evening of Progress and Promise Register today for the 2024 Step Forward to Cure TSC! Register today for the 2024 Step Forward to Cure TSC® at www.stepforwardtocuretsc.org. ⁠ Join thousands of tuberous sclerosis…... Register today for the 2024 Step Forward to Cure TSC! Announcing the 2024 Regional TSC Conference and Transition Workshop Series The will be hosting two Regional TSC Conferences and two Transition Workshops in…... Announcing the 2024 Regional TSC Conference and Transition Workshop Series Need help? (800) 225-6872 support@tscalliance.org 8737 Colesville Road, Suite 400 Silver Spring, Maryland 20910-3921 USA 800.225.6872 (Toll-Free) 301.562.9890 info@tscalliance.org Contact Us | Media | Disclaimer | Privacy Policy Facebook Twitter YouTube Instagram LinkedIn Tiktok Inspire Threads This website is made possible through sponsorships from: The information you obtain at this site is not, nor is it intended to be, medical advice. Full Disclaimer | © 2024 | Website by Teramark Search Generic filters Hidden label Exact matches only Hidden label Search in title Hidden label Search in content Hidden label Search in excerpt Popular Search Terms: What is TSC? Find a TSC clinic Diagnostic criteria TSC-associated neuropsychiatric disorders (TAND) Brain abnormalities Close Understanding TSC ▼ What is TSC? Genetics Clinical Manifestations Prognosis Diagnostic criteria Surveillancetreatment Navigating TSC ▼ Prenatal diagnosis Childhood diagnosis Adult diagnosis Coordination of care Caregiver resources Mental health Surveillancemanagement Medication access issues Medication resources Pharmacy Resources TAND ▼ TAND Overview Autism in TSC Dysregulated behaviors Eating and sleep difficulties in TSC Mood and anxiety difficulties in TSC Neuropsychological issues in TSC Overactivity and impulsivity in TSC Scholastic difficulties in TSC Psychosocial issues in TSC Stories of hope Find Support ▼ Find a TSC Clinic Bcureful travellodging assistance Educational support Community support network Connect with a Support Navigator Resources Get Involved ▼ Volunteer Participate in research TSC Biosample RepositoryNatural History Database Seizures and TSC: your data matters! TSC clinical trials Government advocacy TSC Matters E-Newsletter Become a member Run with Team TSC Ways to give News Events Donate▼ About the Our Vision Our Team Our Leadership Our Results Corporate Policies FAQs Careers Healthcare Providers Researchers ▼ Research Strategy Grantsfunding Preclinical research Natural History Database Biosample Repository Clinical Research Consortium TSC Alert Research conferences Manuel R. Gomez Award En Español International This website uses cookies to improve your user experience. By using this site you agree to our use of cookies. Please read our Privacy Policy to learn more....